Make your own free website on

**Heart To Heart Newsletter - #1

By: Donna Heart

First of all, I want to tell you a little about myself. I am not shy about expressing how I feel, but never want anyone to be offended by that fact.

I was diagnosed with Fibromyalgia in 1990. It took over 7 years, and finding a doctor who looked at my symptoms as a WHOLE vs. individually. I suffered a major depression after losing my ability to work. I lost my self worth and pride. I felt like a failure as a single-mother, whereas I had previously been so proud of my energetic relationship with my daughter. I had been proud of my ability to work at large corporations, making the money needed to maintain a productive lifestyle for the two of us.

My depression and self-pity changed while watching the evening news early in 1996. The newscaster reported that Dr. Jack Kevorkian had used his expertise (assisting suicides) to help a young woman, in essence, commit suicide. She suffered from Fibromyalgia. This had a profound effect on me. It was then I realized that Fibromyalgia, could indeed, be fatal. I wanted to help others feeling desperate; hence I developed my Internet Survey. The response from the Fibromyalgia Community has been amazing.

I must admit my motives were not totally selfless when I began this project. I desperately needed to find a way to regain self worth. Then the picture became whole when I received one of first survey responses from a woman revealing that I had given her a sense of self worth! She said until my survey, that no one had EVER asked her how she felt about the changes Fibromyalgia introduced into her life! My goals turned totally toward wanting to help the Fibromyalgia Community. If I can spare one individual the experience of the severe depression I faced, then my work will be successful!!

As well as receiving and replying to surveys, I am in the process of entering all information accumulated into my Database Program. This will allow me to "sort and filter" information.

(Here are a few samples of what can be determined from my project... How many men responded to the survey... How many surveys mentioned suicide... Which location generated the most responses... How many people mentioned smoking pot as a form of pain relief... What are the personal "most common" theories people believe triggered Fibromyalgia... How many people mentioned using witchcraft as a means of therapy... How many marriages/relationships have dissolved due to the onset of Fibromyalgia... Which gender is diagnosed quicker... and the list will continue. I will be able to provide a wealth of information using the surveys received.

I am striving to have a "rough draft" for submission to potential publishers by the end of this summer - 1998. (I have already been contacted by two publishers. They have shown great interest in publishing my results.)

Please remember, I am working as diligently as possible on my book project due to my personal battle with Fibromyalgia.

I care, and I want to give the Fibromyalgia Community a positive, witty, and informative book to read.

Latest News Flash: The article from the Charlotte Observer surfaced in the San Diego Tribune the same day as the Super Bowl.

Previously, it had surfaced in several other newspapers on Thanksgiving Day 1997.

**Newsletter #1 - Written March 12, 1998 Other Newsletters will be published approximately every two months.

~Donna Heart (Internet Name)

Please feel free to contact me. Please use my Internet name:

Donna Heart
718 State Street
Lincolnton, North Carolina 28092

(704) 732-8032

If you are interested in checking out my web sites, you can use a computer at the library if you do not have one at home. These sites must be entered EXACTLY as follows...

  • If you are looking for the Interactive Fibromyalgia Survey, you are only one click away! Please check it out!!

  • To read the Newspaper Interview, and for more publicity information, check this out!!

  • You are on the Heart to Heart Newsletter Page!!!

  • Fibro-Haze Page #1
    The laughter begins here!!

  • More Fibro-Haze Humor #2
    And even more laughter... You'll like it, you'll love it, you'll want some more of it!!

  • More Fibro-Haze Humor #3
    Look here for a good laugh!

  • More Fibro-Haze Humor #4
    And even more laughter...

  • More Fibro-Haze Humor #5

  • More Fibro-Haze Humor #6

  • You are on Fibro-Haze Humor Page #7!!

  • Teen Fibromyalgia Page
    If you are a teen with Fibromyalgia, please check out this site. Crystal is trying to form a "Circle of Friends" for teen support!

  • Fibromyalgia, what a pain in the...
    Heart!! A pain the heart... this is what Fibromyalgia looks like to me! Check this out for a 'smile'.

  • Recipe Exchange!
    If you have a great & simple recipe to share, please send it to me! I'll put it on my page! You may see one you want to use!

    Something to think about... "If you want something, which you did not have previously, and decide to try to get it, but are unsuccessful... have you lost or gained anything?" ~Donna Heart
    Contact me via e-mail!

    ~Donna Heart


    This Newsletter has been visited times.